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Creating the Rare Disease Movement: The Power of the Patient Community
Building a Patient-Driven Movement: The rare disease community bands together for a fighting chance
The Varying Perspectives of the Rare Disease Patient Advocacy Community on RTT
Building Community Through Connection in the Rare Disease Community
Rare Disease Parenting and the Power of Community w/ Effie Parks
Advancing the Development of Therapeutics Through Rare Disease Patient Community Engagement
RDD Webinar: Driving Awareness by amplifying Young voices in the Rare Disease community
The Rare Special Powers Movement - Dr Eleonora Passeri
CCRD Inaugural Rare Disease Day Video
Rare Disease Day 2022
Strategies for Coping with Rare Diseases | NephCure Patient Summit 2023
Diversity Elusive in Rare Disease Research
